End of Summer....

Well, this was not Lil' Row's best summer...it began with a 16 day stay in the hospital (9 of those in the PICU), followed by an additional 6 day stay, then an overnight visit, a homebound nurse coming in 2 times a week, and Rowan living in nearly total isolation!!!! She picked up Mycoplasma pneumonia in May which caught us totally by surprise and lead to respiratory failure, a ventilator, pseudomonas pneumonia, sepsis, and enemia! Her recovery has been slow due to the scoliosis which is now measured at 80 degrees! It's been a very difficult few months for Lil' Row and her family...and looks to get worse befor getting better! She is scheduled to undergo a VEPTR implant in early October which ofcourse is major surgery but also neccisary...without it her lungs will grow more and more compressed making this summers bout with pneumonias only the beginning!!! So please cross your fingers for Lil' Row and maybe whisper a prayer or two on her behalf and we'll update her blog as soon and as often as we can! Thanks