vision/ gross motor

vision/ gross motor
light bar activity gym!~

Rows Sensory Room

Rows Sensory Room
Work N Play Room

Rows Sensory Room

Rows Sensory Room
Rows Sensory Room

Firework

vision

vision
light brite cube

vision

vision
light box block city

vision/ communication

vision/ communication
Disco ball switch toy

music

music
music time!

strength/ support

strength/ support
stander

strength/ positioning

strength/ positioning
Creepster Crawler

trunk strength/ leg strength/ neck control

trunk strength/ leg strength/ neck control
Jolly Jumper

Stretch, massage, and range of motion excersize!

Stretch, massage, and range of motion excersize!
Excersize Ball

hydrotherapy

hydrotherapy
therapy with sissy!

Vestibular Input

Vestibular Input
Sensarock Play

more vestibular input

more vestibular input
ekkore swing from ikea

gross motor

gross motor
Activity Gym Rings!

gross motor/ vision

gross motor/ vision
Busy corner

Sunday, August 14, 2011

End of Summer....

Well, this was not Lil' Row's best summer...it began with a 16 day stay in the hospital (9 of those in the PICU), followed by an additional 6 day stay, then an overnight visit, a homebound nurse coming in 2 times a week, and Rowan living in nearly total isolation!!!! She picked up Mycoplasma pneumonia in May which caught us totally by surprise and lead to respiratory failure, a ventilator, pseudomonas pneumonia, sepsis, and enemia! Her recovery has been slow due to the scoliosis which is now measured at 80 degrees! It's been a very difficult few months for Lil' Row and her family...and looks to get worse befor getting better! She is scheduled to undergo a VEPTR implant in early October which ofcourse is major surgery but also neccisary...without it her lungs will grow more and more compressed making this summers bout with pneumonias only the beginning!!! So please cross your fingers for Lil' Row and maybe whisper a prayer or two on her behalf and we'll update her blog as soon and as often as we can! Thanks